It's been 2 weeks since Micah & I came home from Emanuel Children's Hospital. He is doing well on his medication. We're still figuring out the best dosage for him; we want to give him the lowest possible dose, but obviously need it to be effective. Unfortunately, that means that he's been having a few seizures here and there during this transition time.
Emotionally, it's very tough because I know that my baby could have a seizure at any moment and all I can do is hold him, make sure he's breathing, pray for it to stop, try to concentrate on the symptoms so that I can report it to his neurologist, time it (to make sure it doesn't last longer than 5 min.), then just comfort him when he comes back and is upset afterwards. Definitely a trial.
However, I am incredibly thankful that we have this medication and an amazing pediatric neurologist and pediatrician who genuinely care about my son. Most of all, I'm thankful for the opportunity that this has given us to grow closer to God and to completely trust Him. This experience has made me realize, more than any other time in my life, that I don't have control over what's going on. I don't understand why this is happening. I can't make it go away. Our only comfort is that God sees the big picture when we don't and He has only good plans for us.
Romans 8:28 - "We know that all things work together for good to them that love God, to them who are the called, according to His purpose."
Jeremiah 29:11 - "'For I know the plans I have for you', declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.'"
Hebrews 2:18 - "Since He himself (Jesus), has gone through suffering and testing, He is able to help us when we are being tested."
I'm so grateful that we're not in this alone. I can't wait to see how God uses this; may He be glorified!